Tori became a St Jude patient 4 years ago after spending the summer at LeBonheur for a cyclic vomiting episode. LeBonheur decided to do a MRI of her brain, as cyclic vomiting is both gastro and neurological; basically it's an adominal seizure. They found a brain stem lesion in her medulla and transferred us to St Jude. Apparently Tori is unique; doctors have never seen a lesion like it. Since it's in the center of her medulla and has spread into her c-spine, it is inoperable and can't biopsy. As a result, she is closely monitored with conservative treatment, meds to control the side effects, followed closely by several St Jude clinics (neuro-oncology, neurology, nephrology, cardiology, endocrinology, genetics, eye clinic, psychology (memory issues), nutrition, and GI (probably a couple more I'm forgetting lol), and followed by LeBonheur, Mayo Clinic, and Vanderbilt (as we have had consults from specialists at 10+ hospitals across the nation. Now, 4 years later, at age 15, and still labeled as "brain stem lesion," we are at peace with still not having an exact diagnosis or prognosis. We are grateful to the St Jude doctors for not giving up on her and walking this rare journey with us!
I am a St. Jude Hero! I have chosen to run for a reason bigger than myself by fundraising for Tori and the kids and families at St. Jude. I am training to cross the finish line on race day and with your donation we can cross the fundraising finish line together because the money you donate helps find a cure for childhood cancer.
Did you know:
- Families never receive a bill from St. Jude for treatment, travel, housing or food - because all a family should worry about is helping their child live.
- Treatments invented at St. Jude have helped push the overall childhood cancer survival rate from 20% to more than 80% since it opened more than 50 years ago. St. Jude is working to drive the overall survival rate for childhood cancer to 90%, and they won't stop until no child dies from cancer.
- St. Jude freely shares the discoveries it makes, and every child saved at St. Jude means doctors and scientists worldwide can use that knowledge to save thousands more children.
Donate today to help me reach my goal. Even when the race is over, the fight to end childhood cancer continues.