I am a St. Jude Hero! Not really. That is a name that they give to someone who is a fundraiser for St. Jude, but I'm not a hero. I am a grateful mom. I am a mom who walked through the doors of St. Jude 17 years ago, desperate and clinging to the hope that they would be able to help our little baby boy.
MPS 1, Hurler Syndrome, is a rare genetic disease with no cure. 17 years ago, we received that diagnosis and everything I read said we were going to take our son home, that he would start regressing, that he would become blind, deaf, mentally impaired and that his organs would begin shutting down. That he would die between the age of 5-10. Did St. Jude cure him? No. But they did a bone marrow transplant that saved his brain and slowed the progression in his body. They bought us precious years that we may not have had and time in which a cure may be found. They have given us 17 years worth of doctors appointments, tests, procedures, surgeries and more, where we never saw a bill. They gave us life. Time to make memories.
So once again, I have chosen to run for a reason by fundraising for the kids and families at St. Jude, including ours! I am training to cross the finish line on race day and with your donation we can cross the fundraising finish line together because the money you donate helps families, like ours, find HOPE.
Did you know:
- Families never receive a bill from St. Jude for treatment, travel, housing or food - because all a family should worry about is helping their child live.
- Treatments invented at St. Jude have helped push the overall childhood cancer survival rate from 20% to more than 80% since it opened more than 50 years ago.
- St. Jude freely shares the discoveries it makes, and every child saved at St. Jude means doctors and scientists worldwide can use that knowledge to save thousands more children.
Donate today to help me reach my goal. Even when the race is over, the fight to save children continues.