15 years.... 15 years ago we were told that our 13 month old son had a rare genetic disease, MPS1- Hurler Syndrome, and that there was no cure. 15 years ago we were told that many parents just took their baby home and loved on them, and lost them between the age of 5-10. 15 years ago, we were told there was only one viable treatment (not cure) to help our baby, and that was a very dangerous bone marrow transplant, that if he made it through would help slow the progression of his disease in his body, and stop the progression in his brain. 15 years ago, we were told there was a doctor at St. Jude who had studied with Hurler kids and could help. 15 years ago, we walked through the front doors of St. Jude for the very first time, scared beyond reason that we were going to lose the baby that we had prayed for for so long. And now... 15 years later, that little boy is 16 years old, still fighting the fight that is his life, but going strong, thanks to God and St. Jude.
So this is a HUGE year for us. Celebrating 15 years of LIFE. And because of that, we want to go big for the hospital that we have called home for 15 years, and to help that hospital save the life of another child. Please join me in my fight. Please put yourselves in the shoes of our family, and all of the other families at St. Jude. Think of your child and what you would want if they were fighting for their lives. Did you know that in the 15 years that Caleb has been a patient at St. Jude, we have NEVER received a bill from St. Jude? Families at St. Jude never receive a bill for treatment, housing or food- because all a family should worry about is helping their child live. Wow!
St. Jude is leading the way the world understands, treats and defeats childhood cancer and other life-threatening diseases. Thanks to donors like you. Thank you for donating and helping me reach my goal for Caleb and all of the kids of St. Jude!